tag:blogger.com,1999:blog-5549789856840440400.post1748239255455069531..comments2022-04-27T01:21:06.220-06:00Comments on Biomedical ME/CFIDS: Reeves Strikes Again - "It's Your Uterus, Dearie!"Unknownnoreply@blogger.comBlogger15125tag:blogger.com,1999:blog-5549789856840440400.post-27954603290875270702011-03-15T13:51:40.718-06:002011-03-15T13:51:40.718-06:00LOL, Caroline!
Actually, that's the "Reev...LOL, Caroline!<br />Actually, that's the "Reeves Disease" definition.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-73323080925919492852011-03-15T13:29:39.262-06:002011-03-15T13:29:39.262-06:00Bill Reeves's definition of a CFS patient:
A w...Bill Reeves's definition of a CFS patient:<br />A woman abused as a child with a personality disorder and a bad uterus.Carolinehttps://www.blogger.com/profile/05335689906875659255noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-75872196398469258852011-03-14T19:23:55.208-06:002011-03-14T19:23:55.208-06:00Really nice post, I find this very useful. I think...Really nice post, I find this very useful. I think that it is quite important to know about this. Thanks for sharing.life insurance onlinehttp://www.xlife.com.au/life-insurance/noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-11711153622704773762011-03-13T19:52:16.941-06:002011-03-13T19:52:16.941-06:00Yes, Flo, chocolate is a medicinal herb in my mind...Yes, Flo, chocolate is a medicinal herb in my mind. Especially in a liqueur.oerganixhttps://www.blogger.com/profile/12870957662833413723noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-29759932082149276502011-03-13T11:52:53.247-06:002011-03-13T11:52:53.247-06:00""We acknowledge Elizabeth Unger, M.D., ...""We acknowledge Elizabeth Unger, M.D., and Daisy Lee of the CDC and Suzanne Vernon, Ph.D., formerly of the CDC, for their contributions to the study protocol."<br /> <br />After reading this, I think I need a good stiff candy bar.Flohttps://www.blogger.com/profile/00565087657214691714noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-12690578194042824702011-03-12T16:09:17.974-06:002011-03-12T16:09:17.974-06:00@oerganix, I totally agree, ME is causing the gyn ...@oerganix, I totally agree, ME is causing the gyn problems. I personally think that XMRV fits.<br /><br />Oh and the Wichita cohort, oy vey, you should see Dr. E talk about it! Yup don't know of any fans...lol.Karenhttps://www.blogger.com/profile/07920712663275138394noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-88332708958591608822011-03-12T14:27:51.741-06:002011-03-12T14:27:51.741-06:00Anon, "host" for what? Why isn't the...Anon, "host" for what? Why isn't the CDC trying to find out the "what"? All of Reeves's "research" points to behavior of the patients as causal. This money should have been spent on finding the biomedical cause(s) of these hormonal dysfunctions, if there are any. Careful reading of the paper did not reveal anything new in that respect, but it did ignore men and children who have "CFS", while promoting the idea that it is a "woman's disease", as usual. Female hormones do not cause ME/CFS - not in women, men or children. On the other hand, a great deal of research has already indicated that viral and retroviral infections can affect the whole endocrine system.oerganixhttps://www.blogger.com/profile/12870957662833413723noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-51074563310812639552011-03-12T10:38:00.255-06:002011-03-12T10:38:00.255-06:00I interpeted the research findings as pointing to ...I interpeted the research findings as pointing to hormonal disfunction ... Which is valid based on some other research findings that whatever the cause, viral or not, reproductive organs are favored as host. this is more proof of biological cause.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-56989963741587494612011-03-12T08:58:35.653-06:002011-03-12T08:58:35.653-06:00Karen, I have some gynelogical problems of my own ...Karen, I have some gynelogical problems of my own and I have no doubt they are related to my ME. The point I am making here is that the gyn problems do not cause ME/CFS as this excellent example of Alice-in-Wonderland-science attempts to direct us. If Reeves and Co had bothered to look at real scientific research, they would have noticed that whatever causes ME is also causing gyn problems.<br /><br />Oh wait! They probably DID look at that research and this is their smoke and mirrors approach to refuting it! Unger has done research on viral cause of cervical cancer. She knows better than to put her name on garbage "research" like this.<br /><br />And Suzanne...wasn't she modest not to mention in the CAA bulletin that she helped design the "protocol" (what?) for this study. Unger may have the coward's excuse that she still works in the good 'ole boy network. What's Vernon's excuse?<br /><br />John, I think Mary Schweitzer made all who are interested aware of how bogus the whole 'Wichita cohort' really is. I didn't include this info here because it was old news to me, but thanks for pointing it out again.<br /><br />Notice that in this "study" they say they didn't use their ISF (insufficient fatigue) group, but infer they may mock up some other "study" and use it there. <br /><br />At best, it's just another in a long history of diversion of taxpayer money away from finding the biomedical cause and treatment of ME. At worst, it really is a crime against humanity. Once again, who benefits? The disability insurance companies.<br /><br />Men, I think you should be contacting your elected representatives about this waste of money on something that is obviously not a 'woman's disease'.<br /><br />FWIW, the NIH has $3.9 BILLION on tap for research into "Women's Health";plus $1 million for vulvodynia;$27 million for uterine cancer;$106 million for ovarian cancer;$3 million for PID;$27 for HPV & cervical cancer VACCINES;$89 million for cervival cancer;$19 million for uterine fibroid tumors;$248 million for 'estrogen';<br /><br />And $329 million for prostate cancer.<br />$521 million for "Mind and Body". <br />$2.9 BILLION for 'Health Disparities" (creating them or...?);<br />$2 BILLION for 'Emerging Infectious Diseases'<br /><br />And $15 million for TMJ - temporomandibular joint problems. Now we see the effectiveness of so many dentists sitting on the panels that vote on WPI research grant proposals. Buddies of Dennis Mangan?<br /><br />$5 million for 'chronic fatigue syndrome' vs. $521 million for 'mind and body'. I wonder who gets to vote on those research grants??? Maybe that guy who went to "Mental Health Surveillance" last year?oerganixhttps://www.blogger.com/profile/12870957662833413723noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-89088778701915068692011-03-12T02:32:44.125-06:002011-03-12T02:32:44.125-06:00One up on you here- many of the patients in this s...One up on you here- many of the patients in this study actually did not have CFS at the time the study took place by any definition, but rather had been 'previously diagnosed' with CFS in the years prior to the study.<br /><br />Between 1997-2000, CDC did an expensive random dialing thing in Wichita and identified a bunch of people who qualified for a diagnosis of CFS. They brought these people in to clinic, did a bunch of expensive tests on them and asked if they would like to participate in the hospital study that was to be done. <br /><br />Then in 2003, when it was time for the hospital study to be done, CDC called all these people up and when the people came in for the study, 2/3 of the individuals previously identified as CFS no longer met the definition. <br /><br />As CDC had already spent a truckload of money identifying these people and running exclusionary tests, they went ahead and included them in the study anyways. When the results were published CDC gave a brief mention in the first low-profile paper that the individuals had been 'previously diagnosed' as CFS, then in subsequent papers it got even more low-key with the CDC usually tucking this quite pertinant info away in some random table or something.<br /><br />They certainly have not made it clear that 2/3 or the 'CFS patients' in the studies using the Wichita dataset actually did not have CFS at the time the study took place. This is also the same dataset that the much-hyped Pharmacogenomics papers were based on, as well as being the dataset a substantial proportion of the CDC's publications in the past half a dozen years have used.<br /><br />A population-based study of the clinical course of chronic fatigue syndrome<br />"This study considered CFS subjects who were identified during any year of the study and who had at least one follow-up visit."<br />http://www.hqlo.com/content/1/1/49Johnnoreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-35717142973282492292011-03-12T01:23:54.653-06:002011-03-12T01:23:54.653-06:00Maybe Reeves and Vernon should read Singh's pa...Maybe Reeves and Vernon should read Singh's patent closely. The pre-cancer and cancer revealed there should give them a big clue.<br /><br />Pre-Cancerous cervical and uterine dysplasia are common and many with CFS get this and therefore get preemptive hysterectomies. Ovarian cysts are common; if left alone, they burst with incredible pain...if left unattended, does XMRV make them into cancerous conditions? Who knows?<br /><br />This is blatant discrimination against women. Reeves is one sick puppy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-50566238817353903832011-03-12T01:06:45.862-06:002011-03-12T01:06:45.862-06:00Not in love with the author or the ridiculously sm...Not in love with the author or the ridiculously small sample size, but ME and gyn problems are known. FMS and gyn probs known for years. Someone presented in Reno in '09 about it.<br /><br />I have a long history (almost 20 yrs) of gyn probs, heavy painful menses, endo, 12 cyst ruptures (no joke), ovary removed, pain continued, come to find out that psoas (sp?) muscle pain mimicks ovary pain. They saw the complex cysts and thought removing it would help the pain...NOT. Deep tissue massage is killer, but the only thing that helps my pelvic pain.<br /><br />Now my 21 yr old daughter previously diagnosed with FMS by Dr. E, has similar symptoms emerging...sometimes I just want to scream...PLEASE help us!<br /><br />Hopefully XMRV will end up being the culprit and I can get her treatment soon. I only have another 10 or 20 years to suffer, she is just a kid!<br /><br />Sorry for the rant, as you can see I'm mad as hell.<br /><br />Karen RavitzKarenhttps://www.blogger.com/profile/07920712663275138394noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-6679136143477598712011-03-12T00:56:53.444-06:002011-03-12T00:56:53.444-06:00Who knew that the USA and UK authorities,
could ge...Who knew that the USA and UK authorities,<br />could get their health care, health insurance and disabilty help, to be so well synchronised?<br /><br />Amazing how neither countries authorities can find biomarkers in their cohorts. Astounding!<br /><br />Yep it's totally weird how these biomarkers only ever turn up in treating doctors cohorts.<br /><br />Well thats not true now is it, how was the UK XMRV study candidates picked, who's cohort were they?<br /><br />What about the patients that purchased XMRV tests privatly?<br /><br />So patients can find cohorts with XMRV,<br /><br />expert treating doctors can find XMRV in their cohort.<br /><br />But the USA and UK TAX PAYER funded "EXPERTS" cant.<br /><br />Odd that!<br /><br /><br />Great blogg ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-21795480577285677502011-03-12T00:30:21.854-06:002011-03-12T00:30:21.854-06:00Bill Reeves and Suzanne Vernon--together again! I...Bill Reeves and Suzanne Vernon--together again! I have to wonder if they ever really parted company. Perhaps Vernon's move from CDC to CAA was simply strategy. It is difficult to believe that the CFIDS Assn of America is still acting as though it speaks for M.E. sufferers. Obviously, it does not. Please read this petition and sign if you agree. Petition to disassociate from CFIDS Association of America as our advocacy representative http://www.change.org/petitions/petition-to-disassociate-from-cfids-association-of-america-as-our-advocacy-representative#signatures?opt_new=t<br /><br />Patricia CarterWildaisyhttps://www.blogger.com/profile/03387587496317619866noreply@blogger.comtag:blogger.com,1999:blog-5549789856840440400.post-89096166945986073452011-03-12T00:06:11.912-06:002011-03-12T00:06:11.912-06:00No apologies or embarrassment when the CFIDS Assoc...No apologies or embarrassment when the CFIDS Assoc. mentioned this study in their CFIDS Link email blast today.<br /><br />"GYNECOLOGIC PROBLEMS COMMON: Gynecological histories of 36 women with CFS were compared to 48 nonfatigued controls. Women with CFS had more gynecological conditions, including non-menstrual pelvic pain, endometriosis and amenorrhea. CFS patients had a higher mean number of pregnancies. 76% of the women with CFS reported hysterectomy compared to 55% of the healthy women. 56% of the women with CFS had one or both ovaries removed, while only 34% of healthy controls had this surgery. The CDC authors conclude that more research is needed to clarify the chronological and pathophysiologic relationships between these conditions and CFS. (Journal of Women's Health, Jan. 2011)"<br /><br />I'd say unbelievable, but unfortunately, I've come to expect this from the CFIDS Assoc. But really, this should have come with a warning, an explanation of why this was NOT good research, and an apology for ever having had anything to do with the CDC.Megnoreply@blogger.com